Challenges of Raising a Kid with Special Needs - By: Pooja S Sharma

Parents of children with special needs often get confronted with problems ranging from settlement of child in school, financial burdens, medical urgencies, social acceptance etc. No doubt it is rightly said that, children with special needs have parents with special needs too.

Besides, taking care of child’s requirements and ensuring his well being; parents also need to learn to cope up with feelings of multitude uncomfortable emotions such as helplessness, anger, fear, guilt, depression, confusion, sadness, jealousy and shame etc.

Increased stress – Handling so much can definitely give you stress. It is vital for parents to take care of themselves by arranging regular breaks and respites from their daily hectic routine. If you are overwhelmed with stress and responsibility, you might pass it on to your child.

Dealing with child care and feelings of inadequacy- Parents must try as much as possible to treat their child normally, in order to not make him feel positive and self-assured. Plan special activities with him and seek his involvement. If required get professional help and counseling.

Financial burdens – Parents must look forward to medical waiver programs, which can assist them in tackling monetary shortages.

Problems of dealing with regular appointments with doctors, tackling medical staff, nursing agencies, community organizations etc –Maintain an updated calendar of appointments with doctors and therapist; align and inform all family members in advance.

Keep organized with a “Things-To-Do” list- Make a checklist of critical errands and medical supplies. Do a weekly inventory and also when travelling keep along all necessary stuff.

Speak up: Don’t hesitate or get embarrassed about asking questions or asking for help, when required.

Medical urgencies – Keep a contact with experienced pediatrician, who can coordinate with you in your child’s care and other medical needs. Along with that, do your own homework regarding your child’s condition. Do not presume that the medical professionals know best for your child or they have all the answers. Always remember, when in doubt get a second opinion.

Sibling anger, jealousy and resentment- Allow and encourage siblings to express their feelings. Spend time with them and help them develop bond with their special sibling.

Social isolation - Your child may be teased or may feel different from other children. Join a local support network group and talk to other parents dealing with similar issues.

Discrimination toward people with disabilities - Take initiative and educate the public about children with special needs to help lessen ignorance and discrimination.

About the Author

Sparsh is best ngo for underprivileged which aims empower underprivileged with the necessary skills to manage life on their own. Sparsh is also conducting various ngo activities like 'Savera Special School', Project Shakti’, Masti Ki Pathshala Employment To Persons With Disability, The Being Training , Make A Difference etc.

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